International Clearinghouse for Birth Defects
Surveillance and Research.
International Clearinghouse for Birth Defects
Surveillance and Research.
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ICBDSR
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History:
The Registry started in 2016 mandated by the Chilean Ministry of Health and became a full,member of the ICBDSR in 2019.
Size and coverage::
The Registry started in 2016 mandated by the Chilean Ministry of Health and became a full,member of the ICBDSR in 2019.
Legislation and funding:
The Registry is run by the Department of Statistics and Health Information, Ministry of,Health, and funded by the Ministry of Health.
Sources of ascertainment:
The registry is based on the notification of cases identified from birth until discharge from,maternity and neonatal care units. Reporting is made by midwives, obstetricians,,nurses, neonatologists and pediatricians, on an online password restricted centralized platform.
Exposure information:
None is routinely collected.
Background information:
Basic demographics and other statistical data are available upon request at the,Department of Statistics and Health Information, Ministry of Health.
Addresses and staff:
Carlos Sans Farfan,Program Director,Head of the Department of Statistics and Health Information, Ministry of Health,McIver 541. Santiago, Chile,Phone 56 2 25740662,Email carlos.sans@minsal.cl,,Lorena Velozo Veloso,Associate Director,Department of Statistics and Health Information, Ministry of Health ,Phone 56 2 25740145,Email lvelozo@minsal.cl,,Cecilia Mellado Sagredo,Associate Director,Registro Nacional de Anomalías Congénitas de Chile,Unidad de Genética, Complejo Asistencial Dr. Sótero del Río. Servicio de Salud Metropolitano Sur Oriente,Unidad de Genética, División de Pediatría. Pontificia Universidad Católica de Chile,Phone 56 2 2354 9039,Email cmellado@med.puc.cl,,Rosa Andrea Pardo Vargas,Registro Nacional de Anomalías Congénitas de Chile,Unidad de Genética, Complejo Asistencial Dr. Sótero del Río. Servicio de Salud Metropolitano Sur Oriente,Sección de Genética, Departamento de Medicina. Hospital Clínico de la Universidad de Chile,Phone 56 2 29788513,Email rpardo@hcuch.cl,,
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