Member details

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History:

The registry was created in 2010 at Pontificia Universidad Javeriana using Latin American collaborative study of congenital malformations (ECLAMC) criteria. Since 2016, we have been working with Secretary of Health and SIVIGILA (National Public Health Surveillance System) as another source of information. The Programme became an associated ICDSR member in 2015.

Size and coverage::

Cali is the capital of the Valle del Cauca department, being the most populous city in southwest Colombia. It has estimated 2.319.655 residents according to 2005 – 2020 DANE population projections. 47.8% of the population are male and 52.2% women. The populations represents 51,4% of total population for the department and 4,9% of the country’s population. The program covers 98% of the births that occur in the city of Cali. Covers almost 35,000 births annually, which represents a proportion of 0.1% of national births per year. By other side, there are some sentinel hospital where a case-control system based in ECLAMC methodology is performed.

Legislation and funding:

Cali Congenital Birth Defects Surveillance Program (CBDSP) gathers data on malformations from 2 sources: (1) the National Public Health Surveillance System (SIVIGILA), applying methodology from the National Health Institute, and (3) cases and control from hospitals. The programme is funded by the Pontificia Universidad Javeriana Cali and Secretary of Health of Cali.

Sources of ascertainment:

Information is gathered trough the central electronic server for the case-control modality, and databases of SIVIGILA. In sentinel hospitals a trained physician goes daily during all year and perform a systematic physical exam. Detection period lasts until discharge from maternity services, including live births and stillbitrths (with more than 500 grams).

Exposure information:

Detailed information on various risk factors exposures, maternal and paternal age/occupation, familial diseases and other information is available.

Background information:

The registry reports in a webpage: www.anomaliascongenitas.org with open access. A detailed report of population’s findings is made monthly, semiannually and annually. In order to improve official report and epidemiology of birth defects, the program sent a detailed report of population’s findings every 2 weeks to the case-controls hospitals.

Addresses and staff:

Phone:

Fax:

E-mail:

International Clearinghouse for Birth Defects

International Clearinghouse for Birth Defects